(Edit – I was on a heck of a lot of medication when I wrote this, so I apologise for all manner of errors found in this piece, but I hope the sentiments come across as I had intended them.)
I don’t know how they do it. Honestly. Hospital workers, nursing-staff in particular as opposed to doctors who are, by design it would seem, colder and more clinical. Anyhow, this is the second time in four days I’ve been ambulanced (sic) off to the Emergency Room to deal with pain issues that I thought were akin to Satan straddling upon my chest. Satan, and an elegant the size of Satan, too.
Of course, when you have Severe ME, Ehlers-Danlos Syndrome, Neuro-Lyme Disease, and Postural Orthostatic Tachycardia Syndrome, no doctor really know what to do with you.
This post isn’t so much about what happened -and not much – the fact that I was writhing around in so much pain despite the fact that I was on enough painkillers to stun one of The Rolling Stones at least twice over was suggestive that there is something going on beneath the surface. But they couldn’t find it, and so here I am, back at home, somewhat tranquilliser and utterly exhausted.
An increasing sensation upon entering a hospital these days, however is one that really does grip me to the core. The impending sense of my mortality, and by extension, Doom. Sure, the Almighty proclaims His Mercy supersedes His Justice, according to Scripture, but yet there is so much for which I need to atone, still. My body is increasingly breaking, the doctors know-not what to do, and the ever increasing chances of a life lived with any sense of normality without battling symptom after symptom after symptom – well the negative possibilities multiply as we speak, to borrow from our friend Griffin, the Fifth-Dimesnional being.
What I cannot get to the root of, however, is my utter sadness every time the ambulance staff decide to take me into hospital. Pure and utter grief. On laughing gas today to help with the pain (the second canister I used-up this week), I was on the verge of tears. Both in resignation that I could not get a transfer to the right hospital nor have anyone manage my pain levels for me, alas, is that the world seems to cave in around me just a bit every time I’m admitted, or offered a new diagnosis. This is what is so utterly heartbreaking. My fear of the Afterlife is rather profound, I admit, but what about the fear I suffer of a life not-yet lived. Ten years have gone by, and we’re closer to no-answers, but umpteen diagnosis. What happens at the next crisis of pain, or the one after that? What happens as I watch the cycle of life and death all around me in a sterile, artificial environment where most professionals have to be detached from the patient in order to survive? Aside from my own sins, why do I fear death so much, when I have so many friends who have systematically tried to end their own lives?
Why he utter dread upon entering the hospital, a place where I expect to be helped, where most people expect help, too? Is it because I’ve been let-down too many times and am seeing the fires of Doom ahead? Or because dismissive doctors insist that there is no other pain-type medication available to me to take, whilst I writhe around in unholy discomfort begging for them to make it stop?
Anyway, there is something about pain that is so humanising. It’s almost primal. It forces you to interact with a form of yourself so both physical and psychic that has no necessary root cause, nor one that can be treated with any simple solution. But the humanising aspect of it is that you find yourself begging for death during such an episode, or praying, or doing both…desperate for some release, sick to your stomach that you’ve wasted an evening of a relative accompanying you to the hospital to almost no avail, and finally praying that there was ‘something’ that could be done. I ramble here, but I’m trying to get to the root of why this pain has the habit of making me face-down mortality in ways not imaginable.
In years past, when I was healthier, I could easily visit the sick an the frail in hospitals, show something akin to love and make the m comfortable in my own capacity. Now, in severe discomfort and paramedics not knowing what to do with me other than “well we can’t keep giving you gas and air every time”, suddenly my comfort has taken precedent, and my own self has become the locus of my own being – that selfish part of me that only sees me and my immediate pain.
I long to see transcendence and patience, the state of riḍā, yet on the other hand how do you got about it when your immediate physical experience is only competing you to sink into the swamp of despair. Sure, you truly feel helpless, and God Almighty before you with prayers, but otherwise, where is the real semblance, even, of gnosis? Why are there days in such situation when you beg for death so you might not burden those around you, or feel guilty for having called a paramedic to you when there are genuine people dying? Sure, no one knows this for a fact, but equally pain and humility don’t seem to go hand-in-hand for me these days, for all I see is death every time I try to get some help.
Allah is Greater, and I guess I have to make peace with his will. But my life seems so lost to me, direction and purposeless, only battling symptoms and not realising how insular the conditions have made me. Maybe it is a part of a Plan, though to be let in on it might be a pleasure, too…